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While I was away, this funny thing happened which, admittedly, used to happen with greater frequency but has kind of stopped over the last years. I paid attention to myself.
Yes, yes, I pay attention to myself, but, like, in that I have health issues that demand attention. When on holiday, particularly when travelling without one’s family, who else do you have to focus on…but you?
Flash back about five years. I was in peak health. I had joined a gym, befriended the owner and had a personal trainer. I looked great. I felt great….physically. The problem was that I was all about how great I looked. I let a lot of relationships slide, including the one I had with myself. Because outwardly I was looking amazing and yes, I was very much enjoying grabbing something off the rack from the “regular” section of the store and knowing it would fit before I even tried it on, but, I was also in denial about a lot of internal struggle. And I needed to turn my spotlight back on my family.
So I did.
And then we moved east, and I spent a year looking for work and cooking and baking. And eating. And then of course Shawn’s health took a sharp nosedive and then so did mine.
A year of steroids and treatments and mandatory feet/ankle rest and, well, if you read the blog you know the rest. I gained a lot of weight. Yet the irony was, in ALL other aspects of my life, I was the happiest I have been in years. I found a job I love, made friends, became a proactive part of a new community, and basically started enjoying life again. I was heavier, sure, but that wasn’t the main focus of my being anymore. I lived in yoga pants, jeans and hoodies anyway. And all that mattered was that my husband and kids loved me.
Packing for my trip out west, I took along a bunch of clothes I hadn’t worn in a while. Because I knew that I had nights out, and a lunch with coworkers and plans that required me to dress up a bit. And I packed my makeup because, well, I *was* going to a wedding after all. But without kids to organise and a husband to keep me busy I only had me. So I spent time. And, I gotta say, I was really happy with how I looked. I felt like a more polished version of me. It was great. I texted my friend Dana that I looked good out West and sent her outfit pictures.
On my last day of holidays, Allison and I went out to run a couple of errands and, being early for one of them, we stopped at a store for plus sizes. I had never gone into my branch of it at home. I was still clinging to that memory of being an off the rack size. (Here’s the thing, when I put something on, in my head, I see myself wearing it in my old body so sometimes I get upset when I see how it looks on my current body)
Something dawned on me that day though, trying on clothes with Allison. If I let go of the number on the label and just put on something that fit, and fit me well, I looked great. I felt great!
So, I bought a pair of jeans. Then I came home, went to my branch of the same store, and bought another pair of jeans. And a top. And a vest.
Then I went home and looked at my closet. Big, heavy sigh.
I am a clothes hoarder. No, maybe it’s not that bad, but, I hang on to stuff with the idea that ONE DAY, I’ll get back into it again. It’s been five years. And even with the great new clothes that fit me well and with taking that bit of extra time again to ensure that I was putting a little effort in like I did out West, when I saw the things I had once loved that no longer fit me, the sadness crept back in.
Well, I don’t want to feel that anymore. It was time to get rid of the “I have a dream” section of my closet.

Saturday we took the kids into the city for the Buskers on the Bay festival. We spent morning to mid-afternoon watching the acts and then scooted home so our middle daughter could get to work on time. Kids scattered, hubs went to play his new video game and I went upstairs armed with an empty garbage back and a determination, albeit a slightly nervous one.
It was like ripping off a band aid. I started in the closet. There were skirt suits and dresses. A lot of them like new, and beautifully made. I posted those online in a “buy nothing” group so that some other local woman could get the benefit of my previously expensive taste. As I suspected, everything I posted was gone by mid day Sunday. But the closet wasn’t enough. I started in on my dresser. And my shoes. If it didn’t fit, it went. At first I was sentimental and sad, but as the chore went on, it got easier and easier. And then I started to feel really good. Everything left fit, fit well, I liked it and it looked good on me. Why hadn’t I done this YEARS ago? No more would I open my closet and immediately feel fat and regretful. Now I felt empowered and awesome.
My husband thought this was a good idea so we spent a few hours on Sunday doing his closet as well. And cleaning the room. Amazing how much clutter can build up without really being noticed.
I feel lighter today. I woke up and every option I saw was an actual option.
The only downside? Now I am noticing that the linen closet needs a purge. And the living room. And the kitchen. The joys of homeownership.

I took a vacation. I went to an amazing wedding and met with wonderful people and stayed with an absolutely beautiful friend. And I kind of found myself a bit. And I remembered that I like who I am.

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Last Saturday the hubs and I drove north to Fredericton for an electrical stimulation demonstration. (TENS machines, etc). It was a great opportunity for us to meet some new people and learn about some new techniques in pain control.  Not for him, though, you don’t use those types of products when you have a serious heart condition.   For me, with recurring back pain and sarcoidosis, it was worth looking into.  

Discussion and demo started at six and ended juuuuust before eight and we had been invited to a friends house for nine.  Perfect, time to go have dinner together. 

We were both hungry.  We had left Saint John just around four and had driven straight to the venue.  I must also add that driving along the river in Fredericton is BEAUTIFUL.  Truly.  I’ll never get tired of how lovely the maritimes are.  And I loved that our hour and forty minute drive between two major cities in New Brunswick is so scenic.  Not like driving between major cities in Ontario at all. (Sorry-not sorry, Ontario) 

Anyway, we don’t actually know Freddy very well so we pulled over and looked in the GPS for nearby restaurants.  

Red Lobster.  Within minutes!  Sure it’s weirdly cliche for maritimers to eat there but, biscuits!  Shrimp!  Off we went.  However, upon reaching the spot where the GPS said it would be, there was nothing.  No restaurants of any kind. Nothing that even looked like it was once a restaurant.  Disappointed, we checked again.   Olive Garden.  Six minutes away!  I’ve never eaten at an Olive Garden but Shawn has. He immediately got excited by lasagna.  I did what I do best while navigating,  started a running commentary on every restaurant we passed, which admittedly, wasn’t riveting.  There was an Asian fusion place called Ko-To, a Thai place, a McDonald’s.  Six minutes later and no Olive Garden.  Same situation as with red lobster.  We drove around in case the GPS had merely put us in the vicinity of Italian food, or by this time, 8:30, any food but no. Gas station, optometrist, law office, pet smart. No restaurant.  No Olive Garden. No lasagna.  

We decided to go back to the Thai place. After all, we were due at our friends by nine.  And we were very hungry.  So, back we went.  We parked in the suspiciously empty parking lot and walked to the door.  Closed at 8 on Saturdays.  Closed at 8??? We were flabbergasted.  What restaurant closes at 8 in a weekend?  I turned to my beloved. Ko-To it is.  We got back in the car and started joking about how the city was conspiring against our hunger.  We pulled into the parking lot and the open sign was still on. Another sign pointed us to park in the back.  We drove around and parked beside the only other car. Looking behind us, I noticed that the restaurant was located on the street directly in front of a mini mall with a McDonald’s.  Ha ha, I thought. No homogenized burgers and fries today. 

There was a long ramp on the side of the building that wrapped around to the front door.  That’s nice, I remember thinking.  Wheelchair friendly.  JUST As we reached the top of the ramp, we heard a loud lick click. We rounded the corner in time to see the open sign get turned off. 

Because they closed at nine. Because Fredericton did not want us to eat.  Laughing softly through our raging hunger pangs, we went back and say in the car.  We watched seconds later as a lady came out the back entrance, got into her car (right beside us) and drove out.   We watched her drive right around and into the McDonald’s  lot behind us. Shrugging, defeated and famished, we followed.  Shawn and I ate our Big Macs and loudly rolled our eyes at one another over the terrible conversations by a nearby table of six teenagers.  Thn we went to our friends house for a great evening with adults. 

That was last Saturday.  And three weeks before that we came home from Ontario to my having to deal with a bad case of laryngitis.  No voice for four days.  

Last Sunday my throat was sore.  Monday it was very sore.  Tuesday myself and all three teens went to the clinic for sore throats and varying degrees of voice loss (and this is prom/grad week for ash).  We were given the once over and prescribed a gargle for our sore throats.  By last night just before I left work, I could not swallow.  So I went to urgent care.  Raging laryngitis.  I was told to stay home and not talk.  Naproxen for pain, and wait.  

So I’m home today.  I can’t talk and I’m frustrated.  Our middle daughter graduates high school tonight.  Im going to go, I’m going to cry, but I won’t be able to say a word.  

And that, my friends, is how I’m kicking off my holiday week.  

Good grief.  

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My parents arrive tomorrow for a few days’ visit. I’m actually really happy to have them come. Because they are leaving in a few weeks for a trip back to the motherland. Ireland. And shortly after that, they are moving back to Ontario. Yeah. I have no idea why either. If my own recent trip back to Ontario taught me anything, it’s that I don’t want to live there again and I don’t know why anyone else would either after they’ve had a taste of life in, um, I don’t know, ANY OTHER PROVINCE. I take back ANY time I have bitched out here about traffic or construction. We have it easy. We have it super easy.

What I *did* miss was people. Specific people. My daughter. Oh lord Keisha you are SO beautiful you don’t even realize. And seeing you happy, full of energy, settled, you have no idea how much that made me smile. I think the last time I saw you in such a good place, you were about 12. Maybe. I’m so proud and I really wish we could spend time together more, but at the same time I’m happy to let you live your life and just…fly.
Best friends Alex and Greig. I have no words. Three years were like three days. Because we just fell right back into our wonderful ways as if no time had passed at all. God I missed you.
My brother and sister and the new baby. Yes, I have two other sisters in Ontario and I didn’t get to see either of them, but new babies win. Always. And Saoirse is a dream. My eighth niece (I also have three nephews) and I’m sure, knowing our family, that we’re not done yet. I mean, I am done, but I still have two unmarried brothers and Ciaran and Angela are newly weds, I’m sure they’ll have at least one more. I just love the babies. LOVE

One of my favourite visits of the trip was seeing my grandparents. I love how my Grandmother is still so full of joy and laughter. I loved making Grandpa’s eyes light up at new pictures of my kids, their great-grandchildren. I love their cozy home and I just loved spending time with them. I miss that, living so far away. I don’t know how many more opportunities I’ll have to do it.

So I came home, out from the (not even kidding) 40 degree heat, to a brisk 12 degree, cool Saint John day and promptly lost my voice. Total laryngitis. I actually could not make any sounds for three days and even now, I’m still scratchy.

June is not cooling its heels though, and we are careening quickly through a season that has left me emotional. Aislinn, our middle daughter, is graduating high school in a few weeks. I don’t know, I’ve been through this graduation thing before, but, on different scales. Liam finished the way I did, through correspondence. Keisha finished through an alt high school and I definitely remember her graduation ceremony, and how choked up I was sitting in the auditorium with Shawn watching our baby cross that stage to get her diploma. But Ash is the middle baby. I have a mental picture of my kids: the “older two”, Ash, the “middle child” and (much to their eternal chagrin that I STILL use this term) the “little two”. If Ash is graduating, that means that really, for REAL this time, they’re all getting older. I have one kid moved out, another on the cusp and now Aislinn making plans for moving on and my beautiful big family is shrinking.
Believe me, I do know that it will eventually get to the phase where it grows again when they all start making their permanent relationships and having their own families. But right now, I’m in the midst of the emotional roller coaster of watching them grow, and letting them go.

I’m feeling my age. I’m searching for a cure to that.

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Where did all the damn traffic come from??? Seriously? And I won’t even talk about the INSANELY aggressive drivers. No wonder we were always smoking and stressed out. Woah.
We landed yesterday morning at about 6:45am Ontario time, got Shawn dropped off in Brampton and then I went to Guelph to pick up our oldest daughter Keisha from her house and we zoomed 25 minutes north to Elora, my hometown. We walked around for about an hour, saw the house where I grew up and where she spent most of her childhood weekends and almost all of her childhood major holidays and decided that it had changed too much. The town, that is. The vibe was completely different. It no longer felt like home to me. So, we headed back to Guelph. As much as to beat the massive storm clouds as to go play around the other city I grew up in and where her Dad and I first met. We had a great time. We saw the high school I went to in Grade nine, both where it used to be and where they rebuilt it, the park where Shawn and I had our first kiss, his old high school, the hospital where my beloved Nana lived out the last years of her life, and a whole bunch of “places of interest”. Read: where all my teenaged shenanigans took place. The Guelph ones, anyway.
But the city has changed SO MUCH. At one point we were headed to a Walmart, which I distinctly remembered the location of, and she kept telling me to turn too soon. I tried to argue with her but, well, she lives here now, so I turned and there it was. Guelph had picked up the whole damn building and moved it. And painted it green! I told Guelph to go home, because it was (and is) clearly drunk.

We didn’t actually wind up taking a lot of pictures, though I thought we would, but, we were so in the moment yesterday. And dudes, she looks fucking amazing. She has worked really hard for the last year and has lost almost 80lbs and she just was so, so, HAPPY. I loved it.

We went out for dinner all three of us last night and finally Shawn and I got some sleep.
Today I get the morning to do just this: writing. First this post and then I’m working on my book again. (SQUEALS OF JOY) and then….
We’re off to Paris Ontario tonight to see our beloved friends and to go to the theatre. You remember my theatre days, right? Lord I miss that. The last show we ever did and by far my favourite was I’ll Be Back Before Midnight. Damn I loved that role. I played Jan. I got to go crazy, shoot a (fake) shotgun, cry onstage, kiss onstage, freak the fuck out on stage, go catatonic onstage and finally, murder my stage husband with an axe. It was awesome.
And Paris Performers are doing the show tonight. So we’re going to see it. YAAYY!!!!

Tomorrow we are going to meet our new niece for the first time, see my brother and sister in law, see my Grandparents and get ready for the early Sunday morning flight home.

I’m already sunburned (I had forgotten about Ontario heat, it’s going to be 40 today with the humidity), I’ve already laughed until my face hurt. I’ve already gotten emotional.

It’s been the best day so far. I’m looking forward to the next two immensely.

Happy Friday, all!!

Now I’m off to exercise my fingers and work out what’s going on in Summer Poppies. I’ve been working on this book for Four Years. It’s time I get serious with it again and wrap it up.

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We have…an infestation.
No, not like six years ago when we had bedbugs and DEAR GOD may we never endure that perfect storm of EW ever again.

Saturday past. The day before Mother’s Day. We actually had a warm, beautiful day with double digit plus temperatures. It was wonderful! So of course we spent the day out in the back yard doing clean up, pulling out old shrubs and things that we’ve been meaning to pull out since we moved here, raking, you know, all that good hard summer prep work.
We left the back door (to the sun room) open, and, the door from the sun room to the kitchen. Just a bit. Just enough for the dogs to get in and out so they too could enjoy the fine weather.

We forgot to close them.

Saturday night. My daughter and I are in the living room watching a show. My husband is down in the basement playing Assassins Creed. Ash gets up to go to the kitchen for a drink of water and immediately starts yelling for Shawn and I.

Why?

Because we have crickets. Big, giant, black, ugly crickets. All. Over. The. Kitchen.

They were on the floor, on the cupboards, on the wall, ON THE CEILING!!! No, I’m not kidding, two of them were on the goddam ceiling. She was frozen in the doorway freaking out.

Shawn came up and we spent a good fifteen minutes killing, catching and getting rid of them. After we closed the door of course. Our dog Kermit ate one, I’m pretty sure.

That was Saturday.

On Sunday, we found about six more. Three of them in the living room. Yesterday morning the kids killed four more in the morning, more after school and I got two when I came home from work.

So, let this be a lesson to you all. If you’re going to pull up old shrubs and shit trees and basically turn over old earth in dark, pokey corners of your yard, DON’T LEAVE YOUR DAMN DOORS OPEN!

I have to go now. I have a plague in my home and it must be cleansed.

ugh.

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It was a dark and stormy night.

Actually, it was a stupid night after the first day of spring with a freak snowstorm and now it looks like full on winter again and I don’t like it.

It’s twelve thirty six am here. My husband is gently snoring in bed beside me and I cannot sleep. Could be the steroids. Could be my overactive brain. I’ve never been a great sleeper. I mean, I *was* getting good at it for a while there but then I got sick and went on steroids that can mess with your sleep patterns so there you go.

My room is too warm. Which is funny, because before his heart attack Shawn was a human furnace and liked it cool whereas I was always cold, but, we’ve done a switch because my body has already kicked itself into pre-menopause and I’m hot all the time and his new, post heart failure, on blood thinners body is now always cold.
Trade-sies!

I’m annoyed with my illness. I’m ever fearful of his. Who would have guessed that we’d each wake up one day at 40 and be sick for the rest of our lives?

That’s maudlin, I know. But it’s late and therefore the maudlin thoughts are the ones with top billing. My brain always did like to fixate on the negative. At least that’s what a therapist once told me.

I miss smoking sometimes. But I don’t miss the money it ate up, the smell of it stale or the health problems it probably was a huge contributor too.

I need some sleep. I’m going to be so tired in the morning. But, the plows are out and they’re doing the circulation of the school parking lot across the street, so all I can hear is that loud engine revving and the sound of the scoop scraping on the asphalt. Not exactly a lullaby. A very Canadian sound. Like a zamboni. Or tinny voice at the Tim Horton’s drive through.

I’m going to try to sleep soon. I’m going to lay down, tuck my body pillow neatly between my knees and pinch and release my muscles, from my toes to my nose, as a yoga teacher once taught me, until my whole body remembers how to relax at the same time.

I will not get distracted by the beckoning electric light of my cell phone’s internet. I will not.
Probably.
An hour, tops.

Goodnight, strange world. I’ll see what you look like in the morning.

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It turns out, a LOT of you read my post on the ONE night I didn’t love my hospital. Like a lot. It was one of my highest rated posts ever. Which is not a bad thing. I even got a thank you for writing it from one of the staff members at the hospital. But let me fill you in on what’s going on since then and why I am back to full-on loving my hospital.

Yes, it was a shit night. No, no one should have to wait 11 hours in pain before seeing someone. That was crap. I stand by that.

So I posted my pity party thing the other day. Feeling sorry for myself and whining and all that good stuff. But then, some things happened.

On Monday, my husband drove our daughter to Halifax to tour the University she was accepted to (don’t ask me how in the hell we’re going to make those financials happen, I’m still hoping on the lottery) and I went to work. I LOVE my job. I lucked into working at one of the greatest places in the city and I have the most wonderful co-workers. But it’s really hard to keep your spirits up when you’re in pain. My feet were still swollen despite being on meds for three days by that point and my legs were hurting. I was still limping and a lot of people at work asked me how I’m doing. Well, I was honest, but I hate complaining all the time so often my answers were kind of jokey. Oh, you know, still sore, but hey, I’m okay!
I got home Monday night and had some running around to do. My daughter had a flute lesson, with my hubs and other daughter away it was just my two youngest and myself for dinner so we stopped at Sobey’s and I let them get whatever they wanted to eat. None of us were really hungry, it was a nice treat.

When I got home though, I just couldn’t ignore the pains. My legs from the knees down, my wrists, elbows, I was hurting all over. I thought, I’ll take a nice bath. That’ll feel great on all my sore spots. And it did. Until I tried to get out of the bath and I couldn’t get up.
I had to call my 15 year old daughter for help. That night I called my Rheumatologist’s office, knowing I would get a voice mail. I left him a message asking him to please just call me back in the morning. I wanted to know if it was normal for everything to get exponentially worse before it got better. His office called first thing in the morning with an appointment for me for 9:30 Wednesday. That fast.

Tuesday was more of the same. Pain so bad it was hard to get through my day. Shawn and Ash weren’t due to come home until Wednesday but I couldn’t hide from him on the phone how hard it was for me. I got home from work just after 8pm, spent about fifteen minutes with the kids and then came to bed. Within a half hour I heard voices. Shawn and Ash had come straight home from the tour and were here! I’m so glad they got to do their full tour first and I’m so very thankful they were home because quite frankly, I was scared and grateful to have Shawn able to come with me back to the hospital. By now my legs were the same size from my mid-calf down to my toes they were so swollen and there were red patches on my skin.

I saw my Dr. the next morning and he confirmed that I likely have sarcoidosis, a very serious disease, but a treatable one, and it was likely that which kicked me into the RA symptoms. By the time I left the hosptial at 1pm that day, I had had a CT scan with contrast (no, the radio active dye DID NOT give me any super powers. I’m still bummed about that), and EKG and more lab work. He just called the departments and got me in. And everyone was great.

I am off for a few days now on some new meds trying to get the swelling down and my symptoms under control so that I can find my new working normal. It’s daunting, and a little bit scary, but I know that I have some really great care behind me. I may not have a family doctor yet, but I do have a specialist who is looking out for me in every sense of the word and that, my friends, is golden.

It just goes to show you, it’s important to speak up when the system lets you down, but it’s equally important to talk when they really rise to the need.

Now, if only I could stop googling sarcoidosis.

Special thanks to Dr. Grant and that lab tech who took my blood whose name I have forgotten. You were great! Didn’t feel a thing.

On with life, dear friends. A couple of days of bed rest means more work on the current book. And that’s something to be really thankful for!!

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