It turns out, a LOT of you read my post on the ONE night I didn’t love my hospital. Like a lot. It was one of my highest rated posts ever. Which is not a bad thing. I even got a thank you for writing it from one of the staff members at the hospital. But let me fill you in on what’s going on since then and why I am back to full-on loving my hospital.
Yes, it was a shit night. No, no one should have to wait 11 hours in pain before seeing someone. That was crap. I stand by that.
So I posted my pity party thing the other day. Feeling sorry for myself and whining and all that good stuff. But then, some things happened.
On Monday, my husband drove our daughter to Halifax to tour the University she was accepted to (don’t ask me how in the hell we’re going to make those financials happen, I’m still hoping on the lottery) and I went to work. I LOVE my job. I lucked into working at one of the greatest places in the city and I have the most wonderful co-workers. But it’s really hard to keep your spirits up when you’re in pain. My feet were still swollen despite being on meds for three days by that point and my legs were hurting. I was still limping and a lot of people at work asked me how I’m doing. Well, I was honest, but I hate complaining all the time so often my answers were kind of jokey. Oh, you know, still sore, but hey, I’m okay!
I got home Monday night and had some running around to do. My daughter had a flute lesson, with my hubs and other daughter away it was just my two youngest and myself for dinner so we stopped at Sobey’s and I let them get whatever they wanted to eat. None of us were really hungry, it was a nice treat.
When I got home though, I just couldn’t ignore the pains. My legs from the knees down, my wrists, elbows, I was hurting all over. I thought, I’ll take a nice bath. That’ll feel great on all my sore spots. And it did. Until I tried to get out of the bath and I couldn’t get up.
I had to call my 15 year old daughter for help. That night I called my Rheumatologist’s office, knowing I would get a voice mail. I left him a message asking him to please just call me back in the morning. I wanted to know if it was normal for everything to get exponentially worse before it got better. His office called first thing in the morning with an appointment for me for 9:30 Wednesday. That fast.
Tuesday was more of the same. Pain so bad it was hard to get through my day. Shawn and Ash weren’t due to come home until Wednesday but I couldn’t hide from him on the phone how hard it was for me. I got home from work just after 8pm, spent about fifteen minutes with the kids and then came to bed. Within a half hour I heard voices. Shawn and Ash had come straight home from the tour and were here! I’m so glad they got to do their full tour first and I’m so very thankful they were home because quite frankly, I was scared and grateful to have Shawn able to come with me back to the hospital. By now my legs were the same size from my mid-calf down to my toes they were so swollen and there were red patches on my skin.
I saw my Dr. the next morning and he confirmed that I likely have sarcoidosis, a very serious disease, but a treatable one, and it was likely that which kicked me into the RA symptoms. By the time I left the hosptial at 1pm that day, I had had a CT scan with contrast (no, the radio active dye DID NOT give me any super powers. I’m still bummed about that), and EKG and more lab work. He just called the departments and got me in. And everyone was great.
I am off for a few days now on some new meds trying to get the swelling down and my symptoms under control so that I can find my new working normal. It’s daunting, and a little bit scary, but I know that I have some really great care behind me. I may not have a family doctor yet, but I do have a specialist who is looking out for me in every sense of the word and that, my friends, is golden.
It just goes to show you, it’s important to speak up when the system lets you down, but it’s equally important to talk when they really rise to the need.
Now, if only I could stop googling sarcoidosis.
Special thanks to Dr. Grant and that lab tech who took my blood whose name I have forgotten. You were great! Didn’t feel a thing.
On with life, dear friends. A couple of days of bed rest means more work on the current book. And that’s something to be really thankful for!!