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A Writer's Journey

Following my journey as a published author… and a few random thoughts.

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The ‘C’ word

January 14, 2013 by Nuala Reilly


Yep.  I’m talking about cancer.

No, I don’t have cancer.  I *did* have it in my 20′s but thankfully we caught it at a very early stage, dealt with it, and have had no recurrences.  Knock on wood.

But I’m not here to talk about that.  I’m talking about cancer from a writer’s perspective.

Here’s the deal.  I’m willing to bet that EVERYONE who reads this blog has someone they know that has either had cancer, has cancer or who was lost to cancer.  That shit is pretty much everywhere.  You can’t get away from it, sadly.

Cancer is everywhere.  That rotten, no good, vile horrible infliction.  My first real experience with cancer and understanding it on any level came in my teen years when I read Gilda Radner’s autobiography.  Sure, I had heard the word whispered around before and yeah, we had touched on it in health class and of course, the second it came out that I am a smoker (oh…I’m going to hell, I know) I heard all of the cancer warnings all the time, from everyone around me who didn’t smoke.  BUT I had never really known anything on a personal level about it.  Gilda’s book, still one of my all time favorites  was the first time I really had a feeling like I understood what someone going through major cancer issues was going through.

First hand was entirely different.  At least for me.  First of all, my cancer was caught early. And, it was not as severe as uterine cancer (like Gilda) or some of the other major ones for women.  I did not have to have chemo or radiation, but I did have to have surgery.

Flash forward.

There I was, in my late twenties, deciding to write a book.  How completely exciting and at the same time, how daunting.  I really had no idea what I was doing for the first bit.  I started with a bare idea and just started to write. The story evolving as I went.  Shortly into it, when I was just getting to know my characters, I realized that I needed something major and emotionally deep to happen to my main male character.  What’s more major than losing a parent?  And how does one accomplish this in a book when the even has to facilitate a huge turnaround in the emotional make up of a character?  A quick and dirty accident wouldn’t do, because I wanted the readers to join Jack (my hero) on his journey.  I wanted them to see where he had been and where he was going and I wanted them to see all the potential in him that I saw.  In order to do that, they had to fall in love with the parent and see him through Jack’s eyes, and then go through the loss with him.

Cancer it was.

So, I decided to start researching various types of cancer.  Coldly, but as I had to be as a writer, I was looking into types of cancer that a) hit males more than females, b) are hard to detect in early stages and easily misdiagnosed and because of that, c) are usually fatal.  I found it.  Pancreatic cancer.

It hits mostly men, it is usually missed in early stages and not diagnosed until it is in late stages and has a high mortality rate.  Morbid, I know.

It was hard for me to get a doctor to talk to me about it seriously.  Most phone calls I made were cold calls and most doctors assumed (before I could explain) that I wanted details about a patient, not about the disease itself.  They refused. But, then I managed to get lucky and a couple of nurses at the cancer clinic where I used to live agreed to speak with me.

It’s funny, but when I was at the amazing day-long workshop hosted by The Toronto Romance Writer’s over the weekend, facilitated by one of my writing idols, Kelley Armstrong, she talked about research and how often so little of what is researched actually makes it into the books.  This was certainly true for me with Autumn Violets.  Kevin, Jack’s father, is a lesser character in the grand scheme of things, but he is important to the plot as is his circumstances with his disease.  However, as much research as I put in to his pancreatic cancer, very little of it actually shows up in the book.

Likewise, the book I’m currently working on, Summer Poppies, the last of the series, has cancer rearing it’s ugly head once again, but it’s not the disease nor the research that is in the book, it’s the deeper parts of the character that are important, not how much I looked up about the mechanics of dying of a terminal illness.

Of course, as life goes, shortly before the book was getting ready to come out, a very dear friend’s father started to lose his battle with cancer.  We were there with him and with the family and in the end, I was even blessed by his family to be at his bedside just moments after he passed.  Nothing that I could have, or have since ever written was as profound as those moments.  Nothing ever could be.  Sometimes words do not work.  And all the research in the world cannot possibly, truly explain what dying of such a disease is like.

I re-read my book, about a year or so after it was out and I can honestly say that I feel like I did Kevin justice.  I even feel like I did the memory of Bill justice, may he rest in peace.  Really, as a writer, that’s all I can hope for.

 

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Posted in All things good, Down and dirty, Emotions, The Books | Tagged cancer, health, medicine, mental-health, pancreatic cancer, research, writing work | 6 Comments

6 Responses

  1. on January 14, 2013 at 9:08 pm Nikki Mohamed

    I agree completely with you on so many different levels with this. First, let me just say that you nailed the Kevin situation with 100% accuracy! I was bawling my eyes out and was actually really pissed off at you for killing him off. I was sort of hoping that he’d get on some experimental drug protocol like my mom did back int he 80′s and end up kicking around to bury his grandkids. But you took the braver and tougher route. And I applaud you.
    Secondly, I have sent email after email and made many phone calls to psychiatrists for research information on the results of drug abuse masking itself as schizophrenia and the difficulties in diagnosis, prescriptions, etc and NO ONE will call me back. I finally got some of the meds info from a friend who is a pharmacist and some research info from another friend who is a counselor working for a psychologist. But nowhere near the amount of info that I actually need to make my novel “credible” yet. At any rate, the efforts that you put into your research may not show up in the text in a medical journal-ish and technical manner. The effects of that information that you gained is visible in the questions that Kevin’s family asked, in the descriptions of his physical changes and energy level changes, in his lashing out at the hospice staff instead of his son. It is so very very relevant in the writing to know what you’re talking about so that the readers are right there in a hard plastic chair in the corner of his hospice room to see, feel, smell the situation and to cry and laugh along with him as we experience every moment right along with him.

    You done good.


    • on January 14, 2013 at 9:41 pm Nuala Reilly

      Damn Nikki, make a girl blush AND cry at the same time. You rock my socks. Thank you.


  2. on January 15, 2013 at 12:14 pm mike

    My mum died of Pancreatic Cancer way back in 1979, and the heartbreaking thing is that we are no nearer a cure now, in 2013, than we were then. It’s always hit a raw nerve, even when nursing patients with this type of cancer, that these are the ones who get the shitty end of the stick, because for them there is no hope, and it’s still a death sentence in many ways. It’s also one of the most painful cancers, and one of the most difficult to control. It’s hard for everyone concerned, the patient enduring the disease, the family who watch their loved one waste away in pain, and for the nursing and medical staff who are often out of options for treating symptoms that don’t leave the patient stoned, and unconscious, or in great, intractable pain.

    ,For many cancer patients it’s not necessarily so now, because there are so many different tools at our disposal, in knowledge of disease, screening programs, investigations, surgery and medications. None of this is true for patients with pancreatic cancer. Because its onset is so insidious, and vague, there are very few symptoms until the disease is well advanced, and often metastasised to other organs.

    Although there is a lot of good news in the detection and treatment of a whole load of cancers these days, we still have a long way to go before we have anything like a cure for this horrible disease. Thanks for bringing it to people’s atttention, lets get on with the research which will help find a cure.


    • on January 15, 2013 at 12:35 pm Nuala Reilly

      Thank you Mike. It’s one of the reasons I chose it, because (sadly) it’s so bleak. I have since met two people who have family members with Pancreatic cancer and one of them talked with me briefly about the same things you mention here. It’s such a shame that there are “popular” cancers which seem to get all attention/funding. Breast cancer, lung cancer, etc. There should be a way to make the funding for ANY cancers be the same across the board. Working in health care, I can only imagine how this impacts you when you come across it at work. My loving thoughts to you today. Big hugs.


  3. on January 15, 2013 at 1:00 pm mike

    It doesn’t get the same exposure because it’s one of the rarer ones, and therefore it doesn’t attract as much funding as say, lung cancer, which affects many more people. If you took funding away from lung cancer, even though to my mind, that would be acceptable, because there are effective treatments for that now, there would be absolute uproar. People would feel that the money they donated for research, specifically because one of their relatives died of lung cancer, was being spent inappropriately, and then you run the risk of people not donating at all, and then all the research stops. One way round it would be to just have a ‘generic’ Cancer Research Facility, which would then divvy up the money according to which needed the most research, and then having a publicity program explaining that some cancers are now on the whole treatable, compared to 30 yrs ago, but that some are still not. You have to be absolutely ruthless in doing this, because you risk upsetting so many people, but I can’t see how to move forward with this unless funding for research is rediverted.


    • on January 15, 2013 at 3:02 pm Nuala Reilly

      I agree. It just feels so crazy that we’ve made these huge strides in some forms and we’re still standing still with others.



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